- There are medications to manage symptoms, and environmental adjustments and lifestyle choices that can improve quality of life.
- Better understanding of signs, symptoms and treatment options will help individuals and families create a comprehensive, holistic plan for disease management.
- There are several experienced and compassionate medical clinicians in North Carolina available to help HD patients, their families, and community health care providers.
- Psychiatric and cognitive symptoms of early Huntington’s Disease begin approximately 8-15 years before onset of motor symptoms; many of these symptoms are treatable.
- The aggressive treatment of depressive symptoms and irritability may allow individuals to remain productive longer, and improve quality of life for the patient and family.
- Finding productive work, whether home-based, volunteer, or paid, will help patients maintain self-esteem.
- Education and caregiver support help family members cope with their affected loved one, and anticipate and plan for future needs.
- Creative living arrangements, knowledgeable in-home care, and alternate transportation plans can protect HD patients in the community, lowering safety risks and hospitalizations, and delay or prevent nursing home placement.
- The North Carolina Huntington’s Disease community is open, welcoming, and willing to share successes and resources.
This is not a complete list of all the creative ways families deal with Huntington’s Disease. We are learning new ways to help families manage Huntington’s Disease every day. We invite you to Contact Us to learn more and share your stories with us.