Enroll-HD Study

Study Sponsor: Huntington Study Group, Center for Huntington’s Disease International

Phase: Observational

Clinical Sites in NC: Duke, Wake Forest

Website: http://enroll-hd.org/

logo-enrollhdEnroll-HD is a worldwide observational study for Huntington’s disease families. It will monitor how the disease appears and changes over time in different people, and is open to people who either have HD or are at-risk as well as their family members and caregivers. Enroll-HD is a prospective observational study, meaning it tracks people over time, rather than asking them to recall how their symptoms have changed. Enroll-HD is a platform. The idea is that this one study will make all other HD research easier, speeding up the process of developing new drugs and other treatments that really work.

The goal of Enroll-HD is to build a truly global database of clinical data and biological samples that will accelerate research world-wide. All research participants and clinical sites currently taking part in the REGISTRY and COHORT studies are welcome and encouraged to continue into the new unified Enroll-HD initiative. For more information see the CHDI webpage for Enroll HD and see the Enroll HD brochure, available by clicking here.

Study Locations and Contact Information

Research Coordinator: Christine O’Neill, CRCC
Wake Forest University Baptist Medical Center
Winston Salem, NC

Research Coordinator: Peggy Perry-Trice
Duke Movement Disorder Center
Durham, NC