Family Support Organizations

Huntington’s Disease Society of America
505 Eighth Ave Suite 902
New York, NY 10018
(212) 345-4372
http://www.hdsa.org/

Huntington’s Disease Society of America-NC Chapter
Chapter President: Lauren Holder
(336) 926-0917
Email: laurenholder@gmail.com
http://www.hdsa.org/ncch/index.html

HD Lighthouse-information, resources and an interactive forum
http://www.hdlf.org/welcome

Family Caregiver Alliance’s Huntington’s Disease and Movement Disorders Online Support Group
http://www.caregiver.org/caregiver/jsp/home.jsp

Huntington’s Disease Youth Organization
http://en.hdyo.org/

HOPES—Stanford University project with great information
http://www.stanford.edu/group/hopes/

National Organization for Rare Disorders
http://www.rarediseases.org/

HD Advocacy Center
www.hdac.org

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