Helping Families with Huntington's Disease
HD Reach is working to improve the care and quality of life for those affected by Huntington’s disease. Founded as a nonprofit in 2009, we provide connections to medical providers, referrals to local services, care management, family support, education, and anonymous genetic testing.
We’re here for you. Call or Email: 919.803.8128 or info@hdreach.org
If you’d like us to know how to help you better, let's be friends. HD Reach is a private nonprofit organization. All information collected is held in strict confidence. All HD Reach services are provided through community based funding, donations, or private pay.
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Check our calendar for upcoming events: Both in-person and virtual. You can register here!
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Check out our store for all kinds of HD gear. It's one of the easiest ways to become an advocate!
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Jeremy * At Risk for HDMy name is Jeremy, and Huntington’s disease has deeply impacted my family. My father, James, passed away on October 3, 2025. He was a devoted father, husband, and grandfather who always tried his hardest to be present, even as HD affected his movement and mind. My mother, Donna, is the hero of our family. She cared for my dad, managed everything at home, and supported me through my own HD testing.
I am forever grateful for both of my parents. Thank you, Mom, for everything.
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People served through our family system model of care.
15,000
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People affected by HD in the US including 1,400 in NC.
41,000
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Americans at-risk for HD, including 8,000 in NC.
200,000
Latest HD News & Research Updates
Latest Huntington's Disease News
Huntington's Disease News, a Bionews site, provides clear, reliable news, research updates, and real-world perspectives to help people living with Huntington's disease and their caregivers feel more informed, confident, and supported throughout their care journey. Information is not meant to replace or provide medical advice.
Before Huntington’s disease (HD) became part of my daily life, I thought legacy was something people created at the end of their lives. I thought it was about accomplishments, titles, money, degrees, or what people would say about you after you were gone. I thought legacy was distant, something I had time to figure out […]
The post Building a legacy: How Huntington’s disease changed my priorities appeared first on Huntington's Disease News.
The approved oral medication Austedo (deutetrabenazine) or its extended-release formulation Austedo XR can help reduce the impact of Huntington’s disease-associated chorea, or involuntary movements, on patients’ daily activities and social interactions, while also easing the emotional and social burden on caregivers. Those are the findings of a U.S. real-world survey conducted in collaboration with the […]
The post Real-world survey shows Austedo eases chorea’s impact in Huntington’s appeared first on Huntington's Disease News.
Turn on the news, and it’s easy to witness a jet stream of anger swirling around the main headlines in our world today: wars, spikes in the cost of living, political campaigns, and more. In observing the various levels of displeasure these headlines provoke, I started to wonder, why do we waste our precious, numbered […]
The post In a divided world, Huntington’s disease reminds me what matters most appeared first on Huntington's Disease News.
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Griffin Foundation -
