Bella Licata

Help HD Reach Bloom!

We walk beside you with services and programs that ease the burden of HD, providing support, education, connection, information and access to care throughout North Carolina.

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Watch the flowers bloom as we get closer to our match!

The Canning Family (Tom, Tim, John, Joe, Mary, Ann) legacy revolves around HD. Three generations - but in 2025 they know that HD has not been passed down to the next generation. Amid their challenges living with HD, the Canning Family now offers you an opportunity to tell your own family story, to plant seeds of hope for HD families, and to help HD Reach bloom this spring.

Our spring campaign – Hope for Generations – is supported by a $10,000 match from the Canning Family. Our total goal is to reach $20,000.

Your contribution to the Hope for Generations campaign will support HD Reach programs and services:

Resources - weekday coverage of calls for support and resource referral from HD patients and caregivers (over 700 calls a year)
Answers - anonymous genetic testing, therapy support before, during and after genetic testing; (since its inception, we have provided testing to over 50 individuals)
Connection - monthly in-person support throughout the State (6 locations!)
Information - a bi-monthly newsletter full of activities, events, resources and news for the HD community (circulated to over 1200 people each issue)
Education - professional training for facility staff, community first responders and physician staff seeking to more deeply serve their families; (virtual and 1:1)
and our commitment to deliver HOPE during scary, uncertain times (for 15 years!)

Please help us reach our goal of $20,000! This campaign ends on June 6, 2025.

Thank you for considering a gift to HD Reach. Our community is a better place to live because of people just like you.

Bella Licata

byHolly Matthews

My HD Hero is my daughter Bella Licata. She was diagnosed with JHD just before her 11th birthday. She’s now 17 and faces mounting challenges due to JHD. She’s in her senior year of high school and thanks to a very supportive team she will be graduating with her peers this spring (2024). Bella is a bit of a foodie and she loves reading, traveling, Harry Potter, Marvel, dogs and most animals, and of course her family. She’s generous, kind, funny, smart and very very brave! As a family we’re trying to travel, experience, and make as many memories as possible.

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What Information Do We Collect? When you visit our website you may provide us with two types of information: personal information you knowingly choose to disclose that is collected on an individual basis and website use information collected on an aggregate basis as you and others browse our website.
Personal Information You Choose to Provide We may request that you voluntarily supply us with personal information, including your email address, postal address, home or work telephone number and other personal information for such purposes as correspondence, placing an order, requesting an estimate, or participating in online surveys. If you choose to correspond with us through email, we may retain the content of your email messages together with your email address and our responses. We provide the same protections for these electronic communications that we employ in the maintenance of information received by mail and telephone.
Website Use Information Similar to other websites, our site may utilize a standard technology called "cookies" (see explanation below, "What Are Cookies?") and web server logs to collect information about how our website is used. Information gathered through cookies and server logs may include the date and time of visits, the pages viewed, time spent at our website, and the sites visited just before and just after ours. This information is collected on an aggregate basis. None of this information is associated with you as an individual.
How Do We Use the Information That You Provide to Us? Broadly speaking, we use personal information for purposes of administering our business activities, providing service and support and making available other products and services to our customers and prospective customers. Occasionally, we may also use the information we collect to notify you about important changes to our website, new services and special offers we think you will find valuable. The lists used to send you product and service offers are developed and managed under our traditional standards designed to safeguard the security and privacy of all personal information provided by our users. You may at any time to notify us of your desire not to receive these offers.
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Notice of New Services and Changes Occasionally, we may use the information we collect to notify you about important changes to our website, new services and special offers we think you will find valuable. As a user of our website, you will be given the opportunity to notify us of your desire not to receive these offers by clicking on a response box when you receive such an offer or by sending us an email request.
How Do We Secure Information Transmissions? When you send confidential personal information to us on our website, a secure server software which we have licensed encrypts all information you input before it is sent to us. The information is scrambled en route and decoded once it reaches our website. Other email that you may send to us may not be secure unless we advise you that security measures will be in place prior to your transmitting the information. For that reason, we ask that you do not send confidential information such as Social Security, credit card, or account numbers to us through an unsecured email.
How Do We Protect Your Information? Information Security -- We utilize encryption/security software to safeguard the confidentiality of personal information we collect from unauthorized access or disclosure and accidental loss, alteration or destruction. Evaluation of Information Protection Practices -- Periodically, our operations and business practices are reviewed for compliance with organization policies and procedures governing the security, confidentiality and quality of our information. Employee Access, Training and Expectations -- Our organization values, ethical standards, policies and practices are committed to the protection of user information. In general, our business practices limit employee access to confidential information, and limit the use and disclosure of such information to authorized persons, processes and transactions.
How Can You Access and Correct Your Information? You may request access to all your personally identifiable information that we collect online and maintain in our database by emailing us using the contact form provided to you within the site structure of our website.
Do We Disclose Information to Outside Parties? We may provide aggregate information about our customers, sales, website traffic patterns and related website information to our affiliates or reputable third parties, but this information will not include personally identifying data, except as otherwise provided in this privacy policy.
What About Legally Compelled Disclosure of Information? We may disclose information when legally compelled to do so, in other words, when we, in good faith, believe that the law requires it or for the protection of our legal rights.
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We are grateful for your donation and support of our organization. If you have made an error in making your donation or change your mind about contributing to our organization please contact us. Refunds are returned using the original method of payment. If you made your donation by credit card, your refund will be credited to that same credit card.

Automated Recurring Donation Cancellation

Ongoing support is important to enabling projects to continue their work, so we encourage donors to continue to contribute to projects over time. But if you must cancel your recurring donation, please notify us.

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